Resources

Epilepsy Foundation Alabama

Epilepsy Foundation Alabama's mission is to lead the fight to overcome challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

• Epilepsy Learning Portal: https://learn.epilepsy.com/

• Seizure First Aid info: www.epilepsy.com/firstaid

• Overall info about epilepsy: www.epilepsy.com 

People can get in touch with the local chapter of the Epilepsy Foundation by emailing: alabama@efa.org. 

Jamaal’s Helping Hands

Jamal's Helping Hands provides client-focused support to patients and their families dealing with a chronic illness. We help these patients and families navigate the many and difficult travails of today's healthcare industry. Our services include various resources and educational information to help you better manage your loved one's healthcare. It is our goal to enhance the quality of our client's lives and to make things easier for their families. 

 Website: http://jamalshelpinghands.org/

Facebook: www.facebook.com/JamalsHelpingHandsInc

Instagram: @JamalsHelpingHands

Alabama Chapter Cure SMA

• Cure SMA Website

• Alabama State Fact Sheet

• Alabama Newborn Screening for SMA Action Alert

• Information on Newborn Screening for SMA

• SMArt Moves Website - Resource that is helpful in states without newborn screening because it educates about early signs of SMA

• SMArt Moves Video on Signs of SMA

E.WE Foundation

The E.We Foundation is a global healthcare advocacy organization working to provide resources and support to families impacted by Edwards Syndrome or Trisomy 18, and other rare diseases, while changing the medical perspective through advocacy, education, and public policy.

Website: theewefoundation.org

Dysautonomia Support Network

PTEN Foundation

The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome.

What is PTEN? - https://ptenfoundation.org/what-is-pten/

Hudson Alpha Institute for Biotechnology

www.hudsonalpha.org

Smith Family Clinic for Genomic Medicine

www.smithfamilyclinic.org

Kruzn for a Kure Foundation

www.kruznforakurefoundation.org