State

  • EMS Protocols for Rare Diseases

  • Medicaid Expansion/CHIP Eligibility

  • Coverage of Medical Nutrition

  • Newborn Screening

  • Precision Medicine and Genetic Testing

  • Step Therapy

  • Telemedicine

  • Prevention of Accumulator Co-Pays

  • Rare Disease Caucus

Federal

  • Advancing Access to Genetic Testing

  • Coverage of Medical Nutrition

  • Creating Hope Reauthorization Act - Authorizing the Priority Review Voucher Program (PRV)

  • Respecting Federal Match for States who expand Medicaid